tale

Chapter 8 - THE DECISION GERTRUDE COULDN’T MAKE FOR THEM

Gertrude’s surgical pathology returned.

Her oncology team recommended further treatment based on the stage and features of the tumor.

Tumor testing also showed findings that made genetic counseling especially appropriate.

No one diagnosed an inherited condition from that alone.

Gertrude needed germline testing if she wanted a definitive answer about the known family variant.

She initially refused.

Again.

Brandon stood at the foot of her hospital bed.

“Why?”

“I already have cancer.”

“This isn’t only about you.”

Gertrude’s expression hardened.

“There it is.”

“What?”

“Nicole has filled your head with this genetic nonsense.”

Nicole was not in the room.

Brandon noticed.

For once, his mother could not make the argument triangulate through his wife.

“This came from Aunt Carol.”

Gertrude froze.

“She had no right.”

“She had every right to tell me my own family history.”

“That letter was Elaine’s.”

“It was about our family.”

Gertrude turned away.

Brandon stepped closer.

“Mom.”

“No.”

“You do not get to decide what I’m allowed to know anymore.”

Her eyes filled.

“I was trying to protect you.”

“From what?”

“Living like a patient before you were sick.”

Brandon stared.

Then he understood.

Gertrude did not distinguish between risk and disease.

To her, knowledge itself was contamination.

If she never tested, she was not a carrier.

If she never had the colonoscopy, she did not have cancer.

If Brandon never knew, he was safe.

Denial had become a family medical philosophy.

Brandon sat beside her.

“I’m going to genetic counseling.”

Gertrude’s face went pale.

“No.”

“You can’t stop me.”

“Brandon.”

“I have Rosie.”

That ended the argument emotionally.

Gertrude looked toward the ceiling.

“I never wanted this reaching her.”

Brandon’s voice broke.

“Then you should have told us sooner.”

The irreversible decision happened three days later.

Brandon met independently with a genetics professional.

Nicole did not attend the first session.

He wanted to hear the information without translating it through his physician wife or frightened mother.

He learned what a positive familial variant could mean.

What screening could change.

What it did not mean.

He learned that predictive testing in children for adult-onset Lynch syndrome risk is generally approached differently from testing adults, and that decisions about Rosie would come later with appropriate specialists if the family variant reached her line.

Most importantly, he learned that knowledge was not a sentence.

It was information.

After counseling, Brandon elected to be tested once Gertrude’s familial status was clarified.

Gertrude eventually agreed to testing too.

Not because Nicole pressured her.

Because Dr. Ortiz asked one question:

“If knowing could help your son make informed decisions, would you still rather not know?”

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Gertrude cried for nearly ten minutes.

Then signed the consent.

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